NCR

Netherlands Cancer Registry...

Description

The NCR compiles clinical data of all individuals newly diagnosed with cancer in the Netherlands. Cancer registration clerks register newly diagnosed cancer patients since 1989 on a national basis. Over the past 30 years, this registry has provided c...

Overview

Acronym

NCR

Name

Netherlands Cancer Registry

Type
  • Population registry
Keywords

oncology

Website

https://iknl.nl/en

Lead organisation

Integraal kankercentrum Nederland

Date established

1989-01-01

Start data collection

1989-01-01

Population

Number of participants

2500000

Countries
  • Netherlands (the)
Population age groups
  • All ages
Population entry
  • Disease diagnosis
Population exit other

patients can request the removal of their data from the registry

Population disease
  • II Neoplasms

Datasets

List of datasets for this resource...

Contents

Areas of information
  • Sociodemographics
  • Clinical data
  • Unique identifier
  • Geographic regions
  • Healthcare centre
Quality of life other

for a subset of people we have PROMs data from the PROFILES registry

Languages
  • Dutch
Record trigger

Patients that receive a biopsy as part of the diagnosis of the disease are identified through the national pathology database PALGA. Other patients are later identified through the national hospital registration LBZ.

Linkage

Access

Data holder

Integraal kankercentrum Nederland

Informed consent
  • Waiver
Access identifiable data

no

Access subject details

false

Governance details

https://iknl.nl/en/ncr/apply-for-data

Approval for publication

false

Updates

Preservation

true

Quality

standards

Cdms other

OMOP-CDM

information

Funding sources

National, regional, or municipal public funding

collaborations

Networks

European Open Science Cloud for Cancer (EOSC4Cancer)